I had experienced migraines throughout my time in Florida and a little bit since returning to Oklahoma, but rarely. It started slowly, and I only had to call out of work once in the first month. Then they jumped up to happening once a week. It felt like it would take three full days to recover, and then I would just get triggered all over again and be sent into the next migraine a week later. I had to be put on temporary leave of absence so I could leave as needed and pull from my LOA hours instead of my PTO. Those were the same LOA hours I would later have to pull from my maternity leave time bank as well. The migraines got worse and more frequent the closer I got to my due date.
I wanted to go into labor naturally this time since I was induced previously. However, times have changed in those twelve years, and they now say that giving birth as close to your due date is much safer than waiting. So my doctor had no problem inducing on my due date this time, and with the amount of suffering I was in, I was begging for any relief... I tried all the tricks to go into labor naturally before the scheduled induction, but had no luck.
This time around, I was induced at 8 a.m., had my epidural at noon, and quickly escalated to full pushing by 2:30 p.m.! She was very ready after some time on my side with a peanut ball. Our little Princess was born so very much smoother than her giant big brother. She came out much smaller at seven pounds nine ounces, but still 100% of adorable sweetness. Since it was still COVID times, the hospital allowed early discharge, and we did not have to wait the three day period like we had previously with Rayne. It was so nice getting to go home quickly and settle into our routine right away.
Four weeks later, after very little sleep, Princess gifted me the most caring Mother's Day gift of all: eight hours straight of sleep! At just one month old, she actually slept through the night. She didn't stick to that, but she would get four to six hours of sleep continuously most nights. By two months, she was sleeping a regular schedule of seven to eight-hour nights. I did not experience the insane sleep deprivation that is usually a three to four month long trial, and I felt beyond lucky for that. During her awake periods, we quickly realized she was extremely observant. She tried copying her surroundings incredibly early and was always super watchful of everyone and everything. Studying it all so very closely. She was great at rolling and wiggling, but she refused to learn to crawl, doing a modified army crawl for the longest time. Her attention was way too focused on language and absorbing every tiny detail in her environment. She spoke early and knew baby sign language for many words, too.
A few months before her first birthday, I gave myself a concussion while putting away groceries by standing straight up into a cabinet door I thought I had already closed. In my lifetime, I had suffered from at least three concussions before this incident and knew how to handle the symptoms on my own and what to monitor for before an ER trip. So, as usual, I avoided medical attention. Then, just as I was starting to feel better and have fewer headaches about a month later, my husband and I both caught COVID.
COVID messed with my brain and senses so very badly. My memory has still not recovered. It was part hallucinatory and part just plain brain-melting. Then, about four weeks after that, I was playing with Princess and she accidently headbutted me in my head. The issue is that I was already resting my head against the wall, and she caused me to smash into it insanely hard with the sudden impact. Instant repeat concussion… Vision issues were instant, and I now know exactly what it means to “have your bell rung,” because I felt sore on both the front and back of my head where my brain banged back and forth from the pure inertia.
After two weeks, my vision was horrible and beyond sensitive. I gave up and finally found a doctor for the first time in over 13 years. She told me I couldn't have possibly hit my head hard enough to be as bad off as I thought. Oh, and that my anxiety was the true cause of allllll of my symptoms. However, she was willing to try to prove me wrong by ordering tons of tests and specialist referrals, which ended up being exactly what I needed. The neurologist started me on different headache meds, and thankfully she actually believed me that the concussion could have done lots of weird things to my brain. I finally found a few options that worked for me to control my migraines and headaches. A mix between two steroid shots directly into the back of the head, daily hydroxyzine, and monthly Emgality injections. I still have lots of headaches, but I haven’t had a single migraine in almost one year now (fingers crossed!)
After returning to work, I started suffering from horrible pain in my hands. I was finally getting about half my shifts to be online chats only, which I loved and excelled at, sometimes even taking three chats at a time. But oh, the horrible pain! I went back to my doctor after a few months of torture, and she sent me to an orthopedic surgeon who then sent me to a 90-plus-year-old neurologist for a nerve conduction study.
This old man was supposedly the best of the best and was sticking around to train his replacement. However, the machines wires were all tangled, and if any one of the dozens of electrodes they attach to you touches another, they short out and don't work. So basically, he would tell me I was about to feel a big electric shock, and then it wouldn't happen. Then he would say it again, and it still wouldn't happen. Then ten seconds later…BAM! a major, sudden shock. The only way to test how your brain controls muscles is to send electronic messages down them and see what pings back. I essentially was sent into a mindset of feeling like Frankenstein's poor monster.
The procedure continued on with random shocks continued on for both arms. And THEN he stuck full-on needles in my hands and ran electricity too them, shocking them harder twice on each hand as well. That needle part is called an EMG. The results showed mild to moderate carpal tunnel in my right hand and mild carpal tunnel in my left. However, right then and there, he gave me his personal advice and suggested I just get surgery in both hands (not just the right) as this condition only gets worse over time and never heals on its own.
The results were sent to my orthopedic surgeon, and we discussed the surgical options. Doing my right hand first seemed like the best choice so I could at least have the use of my dominant hand back first, plus it was the worst affected limb. My doctor said that he only performs a completely open surgery and not the less invasive laparoscopic version. The full open release allows for a full vision on the median nerve and to be fully sure no damage is done to it. It comes with a longer recovery time but a much higher chance of success, so I was on board with this plan. The plan was a five-to-six-week recovery for the first hand, then to repeat with the left after that. I had to take off work and go on another formal (unpaid) LOA, which only meant that while I was juggling all the recovery and scheduling, I also had to juggle tons of red tape and paperwork to just to keep my position at work yet again.
The first hand went oh so very horribly… The surgery itself was a three minute, simple in-and-out. However, my recovery process took a full year. Not being able to use your dominant hand for two weeks is a very disorienting thing all in itself. My original bandage was done much too tightly, and my hand swelled greatly. On top of that, the pain meds they gave me at the hospital to take home didn't work at all with my EDS. I spent two days trying to get new pain meds and finally got something that would work sent in for me on day THREE post-op…It was just ridiculous, and I barely remember those first few days at all from dissociating due to the pain combined with all the working pain meds I filled up on directly after.
Getting the stitches removed was also on the level of pain you could associate with the level of a rib or knee tattoo. This freaking horrible nurse had the dullest scissors in the universe and spent one whole minute (felt like hours) per stitch, just slowly hacking and hacking and hacking and hacking through the tiniest piece of thread in the world. Then she would go to pull it out and say, “You might feel a slight pressure,” and then it felt like a horrible stabbing bee sting instead. My husband told me he didn't realize it was that bad for me because I didn’t scream or even make a single sound. I told him I felt too embarrassed to show discomfort after the nurse walked in literally boasting about how she was a pro “remover,” saying she had just flawlessly removed twenty-four staples from a guy’s chest. I couldn't believe my people-pleasing nature extended so far as to dissociate through the pain to avoid embarrassing an incompetent and excruciating moment that no one should have had to endure. She was, in fact, no longer part of the clinic when I went back later.
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